Archive for Uncategorized
Podcast Episode 3-Shelly Stuart Celiac Nurse interview | Part 2
Posted by: | Comments
Continuing on from the last episode. Erin again talks to registered nurse Shelly Stuart. In this episode we discuss Shelly’s daughter’s diagnosis of Celiac Disease, and how she handled issues like keeping her daughter content while other children around her were eating glutenous foods and treats. Also discussed in this episode are the diagnostic testing available for celiac disease, what each process involves, and what the pros and cons are of each method of testing.
This is part Two of a three part episode, be sure to listen to the first episode for even more information on dealing with celiac disease from diagnosis to a life without gluten. Part three coming soon!
Podcast: Play in new window | Download
Show Notes
Podcast Episode 3-Shelly Stuart Celiac Nurse interview-Part 2
Gluten sensitivity, discussion of testing procedures, and recommendations
Shelly’s website:http://celiacnurse.com/
2G Pharma-Celiac home test: http://www.2gpharma.com/
-Emergency preparedness kit premade: http://www.glutenfreeworks.com/shop/details.php?sku=328
-Emergency prep kit list http://www.ready.gov/america/getakit/
Additional Notes from Shelly:
I would also like to mention that it is possible to have a gluten
sensitivity even if you test negative for CD. It is also possible that
some of your symptoms could be due to a food allergy/sensitivity or
other disease process. Allergy testing by an allergist and/or a
naturopathic physician may help to investigate this possibility. Other
tests can help rule out other diseases.
I encourage everyone to have their symptoms thoroughly investigated by
their MD and specialists before implementing a therapeutic diet or
making any changes. As well, I recommend waiting until CD/gluten
sensitivity testing is complete before initiating a gluten-free diet
because it may create a false negative. Consult your MD, Registered
Dietitian, or other medical specialists involved in your care to
determine if nutrient supplements should be taken and to identify
appropriate dosages for you. Toxicities can occur with over
supplementation and this can lead to permanent damage. A Registered
Dietitian can also provide guidance to ensure all nutritional needs
are met.
References
1. Dr. Stephen Wangen. Healthier Without Wheat. Innate Health Publishing, 2009.
2. Cleo J. Libonati, RN. Recognizing Celiac Disease. Gluten Free Works
Publishing, 2007.
3. Dr. Peter Green and Rory Jones. Celiac Disease A Hidden Epidemic.
Collins, 2006.
4. M Hadjivassiliou, RA Grünwald, GAB Davies-Jones. Gluten Sensitivity
As A Neurological Illness. J Neurol Neurosurg Psychiatry
2002:72:560-563.
5. Marios Hadjivassiliou, Richard Grünwald. The Neurology Of Gluten
Sensitivity: Science vs Conviction. Pract Neurol 2004,4:124-127.
6. Canadian Celiac Association. http://www.celiac.ca
7. Wm K. Warren Medical Research Center For Celiac Disease.
8. Dr. Peter Green. The Celiac Disease Centre’s Channel. Videos
Part 1: http://www.youtube.com/user/CeliacDiseaseCenter#p/c/E4747F2C9D008E6D/0/r8LwNCGcBKY
Part 2: http://www.youtube.com/user/CeliacDiseaseCenter#p/c/E4747F2C9D008E6D/1/qxLF4BAU_Vo
Part 3: http://www.youtube.com/user/CeliacDiseaseCenter#p/c/E4747F2C9D008E6D/1/qxLF4BAU_Vo
9. Dr, Suzanne Lewis. The Celiac Disease Centre’s Channel. Videos
Part 1: http://www.youtube.com/user/CeliacDiseaseCenter#p/c/E4747F2C9D008E6D/3/_4yX7×0ddec
Part2: http://www.youtube.com/user/CeliacDiseaseCenter#p/c/E4747F2C9D008E6D/4/wkdcIrImCDM
Part3: http://www.youtube.com/user/CeliacDiseaseCenter#p/c/E4747F2C9D008E6D/5/DPNuu3d6GJo
10. Dr. Christina Tennyson. The Celiac Disease Centre’s Channel. Videos
Part 1: http://www.youtube.com/user/CeliacDiseaseCenter#p/c/E4747F2C9D008E6D/9/bL9RJhZjuyg
Part 2: http://www.youtube.com/user/CeliacDiseaseCenter#p/c/E4747F2C9D008E6D/10/cQmYYwMpeNc
Part 3: http://www.youtube.com/user/CeliacDiseaseCenter#p/c/E4747F2C9D008E6D/11/bhkzesfqh_k
11. A. Balas, F Garcia-Sanchez, JL Vicario. A New DQA1 allele
(DQA1*0510) In A Spanish Celiac Patient. Tissue Antigens Immune
Response Genetics. Online Dec. 2009
12. Carina Lagerqvist, Ingrid Dahlbom, Tony Hansson, Erik Jidell, Per
Juto, Per Olcen, Hans Stenlund, Olle Hernell, Anneli Ivarsson.
Antigliadin Immunoglobulin A Best In Finding Celiac Disease In
Children Younger Than 18 Months. J Pediatr Gastroenterol Nutr. 2008
Oct;47 (5):428-435.
13. Prause, Christian; Ritter, Maria; Probst, Christian; Daehnrich,
Cornelia; Schlumberger, Wolfgang; Komorowski, Lars; Lieske, Ruediger;
Richter, Thomas; Hauer, Almuthe C; Stern, Martin; Uhlig, Holm H;
Laass, Martin W; Zimmer, Klaus-Peter; Mothes, Thomas. Antibodies
Against Deamidated Gliadin as New and Accurate Biomarkers of Childhood
Coeliac Disease. Journal Of Pediatric Gastroenterology And Nutrition.
July 2009-Volume 49-Issue 1-p 52-58.
14. GR Corazza And V Villanacci. Coeliac Disease. J Clin Pathol. 2005
June; 58(6): 573-574.
15. Jill Stein. Marsh Grading System Not A Good Gauge Of Coeliac
Disease Severity: Presented At UEGW. www.docguide.com
16. Mohsin Rashid and Andrea MacDonald. Importance Of Duodenal Bulb
Biopsies In Children For Diagnosis Of Celiac Disease In Clicial
Practice. BMC Gastroenterology 2009, 9:78
Gluten Free Athlete Profile-Kimberly Bouldin
Posted by: | CommentsI originally “found” Kim through her blog-she has some great stuff so make sure to check her out. Then she “twitted”-or whatever-”tweeted?” about going running and I said to myself-”Self-check this lady out!” Here she is!
Kim and her daughter, Hannah
Hi, I am Kim. I live in central Ohio, right outside of Columbus with my husband and 2 kids. My current sport is running. I am training for a half-marathon on October 18th. I hope to train for a full marathon next May! I just ran my first race ever in July, a 10K (ran it in 53:22). I finished 2nd in my age group & 25th overall (out of 75). (Editor note: Whoohoo! Way to go! I was a gymnast growing up. I started at age 5 until I was 13 or 14.
As far as celiac and diagnosis, I had suffered on & off since I was a teen with anorexia. I had a recurrence as an adult, after the birth of my daughter. It wasn’t nearly as severe as the first time, but still, something that needed addressed. I began to see a dietician. The dietician is the one who suggested I get tested for Celiac disease after my telling her about all the foods that bothered me when I ate them. I had previously been told that I had IBS (editor note:see-the garbage can diagnosis strikes again!). My bloodwork was positive and I was instructed to go gluten-free. It was only after I went gluten-free that I saw a GI doctor, who wanted me to go back on gluten to confirm the diagnosis with an endoscopy/biopsy. I declined because I felt so much better off of gluten….it was night & day.
That was enough for me. I went on to have my kids tested and my son was diagnosed at the age of 10 with Celiac disease. He did have the endoscopy/biopsy done. I knew better by the time he was tested. He is a thriving, happy 13 year old hockey player now. 
I am not positive what my trigger was, but I suspect it was the birth of my first child in 1996. I started
having stomach issues after having him. They got much worse after the birth of my 2nd child in 2002.
Training:
Right now my training consists of lots of running. LOL! I run 5 days/week and my max was 35 mpw-miles per week (editor note-I hardly even drive 35 miles per week). I also try to incoprorate strength training, but that has gotten tough as my mileage increased. I am now in the tapering stage of my training, so I am working back in some crosstraining & strength training.
Nutrition:
My nutritional philosophy is pretty simple: I strive to eat mainly whole foods that are naturally gluten-free.
I do enjoy the occasional treat (dark chocolate is my best friend), but I feel best eating little to no processed foods. I also stay clear of artifical sweetners as much as I can. They really seem to irritate my stomach. If I need to sweeten food or baked goods, I use sugar or agave nectar.
Favorite pre-post workout foods are plain & simple – bananas before. Afterwards…egg white omelet w/spinach & tomatoes, waffles or brown rice cakes with almond butter and fruit spread and fresh fruit.
Favorite sports supplements : Long runs over 8 miles require fueling mid-run & drinking gatorade (powdered & diluted) to keep me from getting dehydrated. For my mid-run fuel, I rely on Clif Shots or Shot Bloks for the most part. They are caffeine free (I don’t drink caffeine) and don’t bother my stomach.
Upcoming competitions: Half Marathon on 10/18/2009 and full marathon in May 2010
Advice for other gluten free athletes: Make sure to treat your body right. Make sure to properly fuel your body for the best performance possible.
You can find out more about Kim at her blog Gluten Free is Life
Twitter: http://twitter.com/kbouldin
Thanks for sharing Kim-and best wishes on your upcoming races!
Follow up on the “Smart Choices” Program-”Cocoa Puffs as Health Food?”
Posted by: | CommentsAbout 3 weeks ago I posted my thoughts on the new “Smart Choices” label. You can find that post here. Today I was directed to this online petition by Kim of Gluten Free is Life. Thanks Kim for the heads up!
Posted on the CREDO Action website is more information on the Smart Choices label. They also have begun an online petition which you can view and sign here. Take this opportunity to educate yourself on what this program entails, and then make a decision based on your own beliefs. Do not accept any viewpoint, whether from me or another, without doing your own due diligence and making your own judgment call.
From the CREDO Action site
Article from CREDO Action site:
Need another example that the food industry can’t regulate itself?
How about an industry sponsored health label that declares Froot Loops, Apple Jacks, Cocoa Puffs, Frosted Flakes and Lucky Charms to be a “Smart Choice”? That’s the thrust of the new “Smart Choices” label, and it’s no accident that it has turned out this way. Though many healthy foods are indeed eligible, the overall structure of the program — with its industry-backed board-members, its burdensome application process and its relatively high fees — appeals to giant packaged food companies at the expense of unprocessed, unbranded foods like fruits and vegetables.
USDA guidelines warn extensively about the need to avoid consumption of added sugars from breakfast cereals, yet the Smart Choices board explicitly defined the label so that sugary breakfast cereals could qualify. That’s not really a sign that the label’s main concern is consumers’ health.
The American Dietetic Association and the American Diabetes Association have already walked away from the Smart Choices initiative, but food companies are maintaining their commitment to it. Meanwhile, in response to the program’s questionable decisions, the FDA has announced its intention to study front-of-package health labels and possibly develop its own, a process which, unfortunately, could take years to complete.
Please join with CREDO and sign this petition demanding that the group responsible for oversight of the Smart Choices label make immediate changes to the program including:
1. Disqualifying sugary breakfast cereals;
2. Allowing all fruits and vegetables without additives to carry the Smart Choices label through a simplified, no-fee application process; and
3. Diversivying the Smart Choices board to include broader food industry and public represntation and to allow for direct FDA input.
Read everything, think it over, make your decision. Then take action.
Athletes Living Gluten Free
Posted by: | CommentsAs this is a blog about living with celiac, being gluten free and fitness-it only stands to reason that I will be
spotlighting gluten free athletes. This will be an ongoing series of gluten-free athlete profiles. Please feel free to contact me if you would like to be involved, and pass the word to those you think may like to be involved. Amy at the Savvy Celiac recently shared a blog post on athletes with celiac disease, which you can find here.
The word “athlete” may have some associations in your mind. What do you think of when you think of an “athlete.” An
Olympian? A collegiate D1 player? A marathoner? A powerlifter? Or a human being with a belief that moving their body can positively impact their life? A person who embraces the unique ability that they personally have for activity?
Here is my definition of “athlete.” An individual who recognizes the importance of doing something the human body is
designed to do-move. One who makes regular physical activity a part of their day, and may even feel odd if a day goes by where they don’t move as much. One who takes any challenges they are given, whether physical or mental, and uses that challenge to fuel them. One who chooses to not make excuses, but design solution when problems arise in the way of their fitness goals. You don’t have to compete to have the mindset of a warrior and an athlete. Don’t sell yourself short. Think, train, eat, live like an athlete. You are an athlete. Accept no limitations.
An athlete may be a walker, a triathlete, a weightlifter, a football player, or none of these categories.
An athlete is one who moves their body with the intention of making themselves better-physically, emotionally, mentally.
Move your body. Honor your design. Live your life.
What is an athlete to you? Let me know…share your thoughts in the comments!
RSS/Feedburner now fixed!!
Posted by: | CommentsMany thanks go out to Ronald at the Ithemes support staff. He has fixed the RSS feed. If you had previously subscribed, I am asking that you please re-subscribe as the old feed is toast. (Gluten free toast.) But it is working!! Happiness!
(And a plug for the Ithemes peeps-they have great support.)
The Surfshelf-the end of cardio boredom and chance to get off your a**!
Posted by: | Commentsand now it’s on SALE!! Hey, can I get a charge back? 
see-it fits!
I am fortunate enough to have a treadmill at home, which I love. The Surfshelf (SurfShelf.com
Technical Issues!
Posted by: | CommentsHello all,
As you can see I’m still trying to get the RSS feed to work properly, I apologize and please bear with me. Also I am reposting all of the previous posts, so the dates will look wonky. Just disregard, it’s the same great content with wacky dates!
