Sign-up Below for Email Updates
Gluten Free

Get the latest articles delivered via email

Archive for Podcast

If you're new here, you may want to subscribe to my RSS feed. Thanks for visiting!

Continuing on from the last episode. Erin again talks to registered nurse Shelly Stuart. In this episode we discuss Shelly’s daughter’s diagnosis of Celiac Disease, and how she handled issues like keeping her daughter content while other children around her were eating glutenous foods and treats. Also discussed in this episode are the diagnostic testing available for celiac disease, what each process involves, and what the pros and cons are of each method of testing.

This is part Two of a three part episode, be sure to listen to the first episode for even more information on dealing with celiac disease from diagnosis to a life without gluten. Part three coming soon!

Show Notes

Podcast Episode 3-Shelly Stuart Celiac Nurse interview-Part 2

Gluten sensitivity, discussion of testing procedures, and recommendations

Shelly’s website:http://celiacnurse.com/

2G Pharma-Celiac home test: http://www.2gpharma.com/

-Emergency preparedness kit premade: http://www.glutenfreeworks.com/shop/details.php?sku=328

-Emergency prep kit list http://www.ready.gov/america/getakit/

Additional Notes from Shelly:

I would also like to mention that it is possible to have a gluten
sensitivity even if you test negative for CD. It is also possible that
some of your symptoms could be due to a food allergy/sensitivity or
other disease process. Allergy testing by an allergist and/or a
naturopathic physician may help to investigate this possibility. Other
tests can help rule out other diseases.

I encourage everyone to have their symptoms thoroughly investigated by
their MD and specialists before implementing a therapeutic diet or
making any changes. As well, I recommend waiting until CD/gluten
sensitivity testing is complete before initiating a gluten-free diet
because it may create a false negative. Consult your MD, Registered
Dietitian, or other medical specialists involved in your care to
determine if nutrient supplements should be taken and to identify
appropriate dosages for you. Toxicities can occur with over
supplementation and this can lead to permanent damage. A Registered
Dietitian can also provide guidance to ensure all nutritional needs
are met.

References
1. Dr. Stephen Wangen. Healthier Without Wheat. Innate Health Publishing, 2009.

2. Cleo J. Libonati, RN. Recognizing Celiac Disease. Gluten Free Works
Publishing, 2007.

3. Dr. Peter Green and Rory Jones. Celiac Disease A Hidden Epidemic.
Collins, 2006.

4. M Hadjivassiliou, RA Grünwald, GAB Davies-Jones. Gluten Sensitivity
As A Neurological Illness. J Neurol Neurosurg Psychiatry
2002:72:560-563.

5. Marios Hadjivassiliou, Richard Grünwald. The Neurology Of Gluten
Sensitivity: Science vs Conviction. Pract Neurol 2004,4:124-127.

6. Canadian Celiac Association. http://www.celiac.ca

7. Wm K. Warren Medical Research Center For Celiac Disease.

http://celiaccenter.ucsd.edu/

8. Dr. Peter Green. The Celiac Disease Centre’s Channel. Videos

Part 1: http://www.youtube.com/user/CeliacDiseaseCenter#p/c/E4747F2C9D008E6D/0/r8LwNCGcBKY

Part 2: http://www.youtube.com/user/CeliacDiseaseCenter#p/c/E4747F2C9D008E6D/1/qxLF4BAU_Vo

Part 3: http://www.youtube.com/user/CeliacDiseaseCenter#p/c/E4747F2C9D008E6D/1/qxLF4BAU_Vo

9. Dr, Suzanne Lewis. The Celiac Disease Centre’s Channel. Videos
Part 1: http://www.youtube.com/user/CeliacDiseaseCenter#p/c/E4747F2C9D008E6D/3/_4yX7×0ddec

Part2: http://www.youtube.com/user/CeliacDiseaseCenter#p/c/E4747F2C9D008E6D/4/wkdcIrImCDM

Part3: http://www.youtube.com/user/CeliacDiseaseCenter#p/c/E4747F2C9D008E6D/5/DPNuu3d6GJo

10. Dr. Christina Tennyson. The Celiac Disease Centre’s Channel. Videos

Part 1: http://www.youtube.com/user/CeliacDiseaseCenter#p/c/E4747F2C9D008E6D/9/bL9RJhZjuyg

Part 2: http://www.youtube.com/user/CeliacDiseaseCenter#p/c/E4747F2C9D008E6D/10/cQmYYwMpeNc

Part 3: http://www.youtube.com/user/CeliacDiseaseCenter#p/c/E4747F2C9D008E6D/11/bhkzesfqh_k

11. A. Balas, F Garcia-Sanchez, JL Vicario. A New DQA1 allele
(DQA1*0510) In A Spanish Celiac Patient. Tissue Antigens Immune
Response Genetics. Online Dec. 2009

12. Carina Lagerqvist, Ingrid Dahlbom, Tony Hansson, Erik Jidell, Per
Juto, Per Olcen, Hans Stenlund, Olle Hernell, Anneli Ivarsson.
Antigliadin Immunoglobulin A Best In Finding Celiac Disease In
Children Younger Than 18 Months. J Pediatr Gastroenterol Nutr. 2008
Oct;47 (5):428-435.

13. Prause, Christian; Ritter, Maria; Probst, Christian; Daehnrich,
Cornelia; Schlumberger, Wolfgang; Komorowski, Lars; Lieske, Ruediger;
Richter, Thomas; Hauer, Almuthe C; Stern, Martin; Uhlig, Holm H;
Laass, Martin W; Zimmer, Klaus-Peter; Mothes, Thomas. Antibodies
Against Deamidated Gliadin as New and Accurate Biomarkers of Childhood
Coeliac Disease. Journal Of Pediatric Gastroenterology And Nutrition.
July 2009-Volume 49-Issue 1-p 52-58.

14. GR Corazza And V Villanacci. Coeliac Disease. J Clin Pathol. 2005
June; 58(6): 573-574.

15. Jill Stein. Marsh Grading System Not A Good Gauge Of Coeliac
Disease Severity: Presented At UEGW. www.docguide.com

16. Mohsin Rashid and Andrea MacDonald. Importance Of Duodenal Bulb
Biopsies In Children For Diagnosis Of Celiac Disease In Clicial
Practice. BMC Gastroenterology 2009, 9:78

Comments (1)

In this weeks Gluten Free Fitness and Wellness podcast, Erin talks to registered clinical nurse Shelly Stuart about her experiences with celiac disease, how gluten affects celiacs from an easy to understand clinical view point, and how she deals with celiac disease in her family. Shelly shares useful resources and information throughout this podcast so tune in to find out more. This episode is part 1 in a series of three, two more will follow in the coming weeks.

Show notes Gluten Free Fitness and Wellness podcast: Episode 2

Interview with Shelly Stuart, the Gluten Free RN-Part 1

Shelly’s website:  http://www.celiacnurse.com/
Shelly on Twitter: GlutenFreeRN

12 part series on Symptoms of Celiac Disease http://celiacnurse.com/category/12-part-series-cd-symptoms/

Intestinal Villi information and how to improve villi health http://celiacnurse.com/10-facts-about-intestinal-villi-health-for-individuals-with-celiac-disease-or-gluten-intolerance/

Celiac Maniac Radio show : http://theceliacmaniac.com/?page_id=942

Additional notes from Shelly:
On the podcast, Erin and I discussed probiotics. Christina Tennyson
(MD), from the Celiac Disease Center in Chicago, mentioned that she is
not sure about recommending probiotics yet. Probiotics might help to
inhibit pathogens and modulate the immune system. However, there are
many unanswered questions. With Celiac disease, what are the best and
safest strains to use? Is there a possibility that a Celiac’s immune
system may respond to probiotics differently? A 2008 study, “Antigenic
Proteins Of Lactobacillus Acidophilus That Are Recognised By Serum IgG
Antibodies In Children With Type 1 Diabetes And Coeliac Disease”,
highlights this possibility. As with any food, gluten contamination
leading to an immune reaction is also a concern? Overall, is there
enough research to know how probiotics will affect those with celiac
disease? I do take probiotics and I have not had a reaction that I’m
aware of. However, as we know with silent Celiac Disease, pathological
changes can be occurring within the body without any obvious symptoms
(2,6,8). If you are interested in consuming probiotics, I recommend
that you talk to your medical doctor to discuss the pros and cons
before making any changes.

Erin and I also discussed whether Celiac Disease is more prevalent in
men or women. I would like to clarify that Celiac Disease tends to be
diagnosed more in women. However, population sampling has demonstrated
that the prevalence of Celiac Disease is fairly equal between men and
women. It seems reasonable to suspect that perhaps women seek medical
attention for their symptoms earlier than men, or women may have more
encounters with physicians due to regular physicals (8).

I would also like to mention that it is possible to have a gluten
sensitivity even if you test negative for CD. It is also possible that
some of your symptoms could be due to a food allergy/sensitivity or
other disease process. Allergy testing by an allergist and/or a
naturopathic physician may help to investigate this possibility. Other
tests can help rule out other diseases.

I encourage everyone to have their symptoms thoroughly investigated by
their MD and specialists before implementing a therapeutic diet or
making any changes. As well, I recommend waiting until CD/gluten
sensitivity testing is complete before initiating a gluten-free diet
because it may create a false negative. Consult your MD, Registered
Dietician, or other medical specialists involved in your care to
determine if nutrient supplements should be taken and to identify
appropriate dosages for you. Toxicities can occur with over
supplementation and this can lead to permanent damage. A Registered
Dietician can also provide guidance to ensure all nutritional needs
are met.

Comments (3)

GlutenFreeFitnessRssToday I’m going to give you a bit of information about me, and what we’re going to be covering in the podcast. I’d love to hear your feedback about what you would like to hear about, so things will be flexible according to the feedback you give me!

-My history-my education, my fitness background, and my celiac diagnosis
-My philosophy –celiac disease as a gift, not a burden. Eating well to live well-importance of good food and the impact on our health, outlook and life quality.
-My goal for the podcast-to bring science based information and put it into a very fun and easy to understand format. To interview experts in the field and get their take on what they feel is important to know. To compile and explain information as it becomes known relating to gluten intolerance and celiac disease. To share my ideas of what can help you live a healthier live-and do it more easily. To answer questions and provide resources.

Read More→

Comments (6)
Powered by WebRing.

Disclaimer

I am not a doctor, nor do I play one on TV. This information is to help increase awareness and knowledge, and is based on my education, research and personal experience. Always contact your doctor if you have questions. Nutritional information provided should not be considered medical nutrition therapy, and is guidance toward wellness only. From time to time I may recommend or review a product or service. I will never recommend anything I would not use/eat myself, and will always give an honest review. If something has been given to me as a free sample I will indicate that. If you buy something thru a link provided, I may receive enough money to buy a coffee. Maybe.
Creative Commons License
This work by Erin Elberson is licensed under a Creative Commons Attribution-Noncommercial-No Derivative Works 3.0 United States License.